Advocating for Bladder Cancer Awareness and Research in Washington D.C.In early spring an email arrived in my inbox inviting me to join a group of bladder cancer survivors from across the...reactionscomments
After the Diagnosis: Treating T1 High-Grade Bladder CancerI was absolutely shocked by a bladder cancer diagnosis in late August 2014. Earlier the same day, my youngest daughter told me that...reactionscomments
UTI or Bladder Cancer? Misdiagnosed Twice!It was the fall of 2013, and I was having a great time with friends and family at Cedar Point amusement park...reactions4comments
Urostomies: Sharing Our Knowledge with Each OtherI have often wondered if a urostomy is something that most healthcare professionals - doctors, nurses, physician's assistants, techs - know and...reactions20comments
The 14th Annual North Carolina Bladder Cancer RetreatWe all need support and to not feel alone. When I read of cancer patients who feel alone because they are not...reactions8comments
We Should Know About Bladder Cancer Before We Are DiagnosedAbout 83,730 people will hear they have bladder cancer this year. Why is it the first time we hear about bladder cancer...reactions10comments
Finding Community: Helping Others with Bladder CancerWho would have thought that having cancer would change my life in a positive way? But it has. I am certainly not...reactions27comments
It's Almost Time: Year 13 of the NC Bladder Cancer RetreatMay is Bladder Cancer Awareness Month and the perfect time to spread the word again about a fantastic event for bladder cancer...reactions2comments
It's a Wrap! The 2021 North Carolina Bladder Cancer RetreatThis retreat originally started in 2008 as a picnic to bring people with bladder cancer together. Showing others they are not alone...reactionscomments
Have You Truly Grieved the Loss of Your Bladder?Let's be honest right out of the gate, not a single one of us woke up one morning and said, "Gee -...reactions6comments
Bladder Cancer Awareness - How Do We Spread the Word?Most of us can probably say that we had never heard of bladder cancer before being diagnosed. Why is that? We constantly...reactionscomments
Dealing with Unsupportive People During Your Cancer JourneyHaving a team of supporters during your cancer journey is extremely beneficial to your physical and mental health. As I stated in...reactions1comment
Starting an In-Person Bladder Cancer Support GroupI was shocked when I was first diagnosed with bladder cancer in 2014, as are many others. Online sites were my salvation...reactionscomments
When All the Information Out There May Be TMI!I had an RC/IC (radical cystectomy/ileal conduit) in September 2014. I don't think about my bag; it has become a natural part of...reactions2comments
Things I Wish I Knew Before Surgery: Preparing for a CystectomyAfter you and your medical team have determined that a radical cystectomy (RC) and ileal conduit (IC) is your best bladder cancer...reactionscomments
Who Should be Included in Your Treatment Decisions?Your support team has a variety of people. We probably all know the incredible value of surrounding ourselves with supportive people during...reactionscomments
Medical Records and History - Are They Current and Accurate?When we put our lives in the hands of medical providers, the information gained from our conversations, tests, procedures, surgeries, and prescriptions...reactions1comment
Myth Busting and Living with a Bag: Life after RC/ICDo you remember the date you were diagnosed with bladder cancer? Most hands will go up with that one! Who would ever...reactions28comments
Humor Is the Best Medicine: Finding Laughs Along the WayI was stuck in traffic heading home from the airport in the early hours last winter, having just returned from a trip...reactions6comments
Health Insurance in the US - What to ConsiderInsurance can be confusing. Recently I have seen posts regarding the high costs related to bladder cancer. I hope that this information...reactionscomments
