is there anyone who is a dietician in the Carolinas?I am looking for a dietician who lives in the Carolinas and had or is currently dealing with bladder cancer preferably....Reactions0reactionsComments3 repliesDiet & Nutrition
New Toledo area support group starting For anyone in the Toledo Ohio area - there is a bladder cancer support group starting up this week being supported by the Eleanor C Dana Cancer center. I am...Reactions0reactionsComments0 repliesCoping
The 14th Annual North Carolina Bladder Cancer RetreatWe all need support and to not feel alone. When I read of cancer patients who feel alone because they are not comfortable sharing their story with others, or because...Reactions0reactionsComments4 comments
Bladder Cancer Awareness - How Do We Spread the Word?Most of us can probably say that we had never heard of bladder cancer before being diagnosed. Why is that? We constantly hear about other forms of cancer - breast...Reactions0reactionsComments0 comments
Starting an In-Person Bladder Cancer Support GroupI was shocked when I was first diagnosed with bladder cancer in 2014, as are many others. Online sites were my salvation and certainly showed me that though this form...Reactions0reactionsComments0 comments
Urostomies: Sharing Our Knowledge with Each OtherI have often wondered if a urostomy is something that most healthcare professionals - doctors, nurses, physician's assistants, techs - know and understand. From the information I have gleaned from...Reactions0reactionsComments20 comments
Humor Is the Best Medicine: Finding Laughs Along the WayI was stuck in traffic heading home from the airport in the early hours last winter, having just returned from a trip to Mexico. I quickly realized there was a...Reactions0reactionsComments6 comments
Medical Records and History - Are They Current and Accurate?When we put our lives in the hands of medical providers, the information gained from our conversations, tests, procedures, surgeries, and prescriptions are recorded. It is imperative that this medical...Reactions0reactionsComments1 comments
Health Insurance in the US - What to ConsiderInsurance can be confusing. Recently I have seen posts regarding the high costs related to bladder cancer. I hope that this information will be beneficial to many of you. For...Reactions0reactionsComments0 comments
My Doctor Says I Am Cancer-FreeI have not written in a bit as I was busy preparing for the 13th annual bladder cancer retreat I co-host. But now that it is over for this year...Reactions0reactionsComments3 comments
It's Almost Time: Year 13 of the NC Bladder Cancer RetreatMay is Bladder Cancer Awareness Month and the perfect time to spread the word again about a fantastic event for bladder cancer survivors and caregivers. I can't believe that in...Reactions0reactionsComments2 comments
The Final Chapter and How It Plays OutLet me preface this by saying that I am not trying to be maudlin or have this be a "downer" article. This is written with the best of intentions and also...Reactions0reactionsComments10 comments
Fears of Recurrence: A Constant Reminder to Remain VigilantIt is always great to see people celebrating the anniversary of the date they had their radical cystectomy, were declared NED [no evidence of disease], or cancer-free. We all hope...Reactions0reactionsComments5 comments
Have You Truly Grieved the Loss of Your Bladder?Let's be honest right out of the gate, not a single one of us woke up one morning and said, "Gee - I think I want to have my bladder...Reactions0reactionsComments6 comments
Myth Busting and Living with a Bag: Life after RC/ICDo you remember the date you were diagnosed with bladder cancer? Most hands will go up with that one! Who would ever think a doctor would recommend bladder removal as...Reactions0reactionsComments28 comments
It's a Wrap! The 2021 North Carolina Bladder Cancer RetreatThis retreat originally started in 2008 as a picnic to bring people with bladder cancer together. Showing others they are not alone, asking questions in an open forum where nothing...Reactions0reactionsComments0 comments
Who Should be Included in Your Treatment Decisions?Your support team has a variety of people. We probably all know the incredible value of surrounding ourselves with supportive people during a serious illness. Our family, friends, and the...Reactions0reactionsComments0 comments
The Value of Community: North Carolina Bladder Cancer RetreatMay is bladder cancer awareness month, and I thought this was the perfect opportunity to tell you about how I met some of my online support team. I was diagnosed...Reactions0reactionsComments6 comments
When All the Information Out There May Be TMI!I had an RC/IC (radical cystectomy/ileal conduit) in September 2014. I don't think about my bag; it has become a natural part of my life. I chose to have RC a short...Reactions0reactionsComments2 comments
We Should Know About Bladder Cancer Before We Are DiagnosedAbout 83,730 people will hear they have bladder cancer this year. Why is it the first time we hear about bladder cancer is when we are diagnosed? I have wondered...Reactions0reactionsComments10 comments
