Post TURBT Complications

Yesterday I had my second TURBT procedure and though initially was able to urinate with minimal bleeding and no clots. In the evening the bleeding in urine became significant (deep red) and with clot. Expelling the clot was when I noticed the difference between the previous urinations. Throughout the night this bleeding and expelling clots (some quite large - well beyond size of quarter).

My concern is that my first procedure resulted in clotting and eventual retention. Though a catheter relieved this temporarily, several hours later nothing was going into the bag… retention and extreme agony lasting hours. At emergency they had to pump out clots through a large catheter. I have never experienced such discomfort and suffering before.

I am very worried the same situation is developing. That first procedure had me with thoughts of if there was a cliff, I might have jumped.

Similar volume of heaving bleeding and clotting occurred prior to initial diagnosis and stopped in a couple of days and non existent before the first scope and discovery of the tumours. I am hoping this resolves in a similar fashion but worried and the apprehension is intense.

I know only early and no total retention again as of yet but already thinking if it doesn’t dissipate soon that upon resolution and BCG, I am already having thoughts to forgo further treatment if any future tumour is found. Perhaps this is short term thinking and duress. I don’t know.

Peter