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Read conversations, start a discussion, and connect with others about bladder cancer.

Awareness for a Rare Cancer

A virtual block party with some of the most in the world raised awareness for rare cancer. The event was inspired by a girl name Lyric Jack. Lyric had been...

What are the long term adverse effects of BCG?

Anyone have success with Pembrolizumab (Keytruda) versus RC?

Do you live differently post diagnosis or treatment?

Not necessarily physically, I am thinking more outlook and engagement?...

Acute Renal Failure - Metastatic Bladder Cancer

Hi everyone, my father is 76 years old and he had stage 1 bladder cancer in 2017 and he decided to remove his bladder (urostomy). We discovered that his cancer...

When the post surgery screening ends

In November 21, I had my 4th and penultimate annual CT Scan. The results were all clear with continued NED (No Evidence of Disease). I was of course apprehensive waiting...

Cancer Comes Home Once More

I'm mad today. I'm a 13 year cancer veteran (prostate and bladder) and been beat up pretty good-but okay. Now my daughter has breast cancer and looking at double mastectomy...

BCG shortage

I recently had a TURBT resection of a non invasive, but high grade papillary urothelial carcinoma (complicated by a bladder wall perforation). I was told in followup today that although...

Excess mucous in my bag

Recently I have noticed an increase in the mucous in my urostomy bag. Could this be caused by me eating certain foods or taking certain vitamins and supplements?...

Six weeks after initial BCG treatment

Hi, I was diagnosed in April with T1 high grade. I had the initial TURBIT in August and then another in September. After waiting 7 weeks I did the 6...

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