FeaturedHow to get second opinionI was diagnosed with High Grade non-invasive bladder cancer in December 2020. It was only on the inner wall, and has not impacted the muscle. I had sent my report...Reactions0reactionsComments4 repliesCystosopy & ScreeningSecond OpinionTreatment
Advice of what to do next? Bladder and urethra have erythemaHi guys, wanted to provide a quick history of what I’ve been going through and get advice on what you guys think I should do next. My issues started three...Reactions0reactionsComments1 repliesCystosopy & Screening
Fleshy material BCG treatmentAnyone know what the pink fleshy material is that is passed shorty after BCG treatment? Nothing on Internet explains it very well....Reactions0reactionsComments5 replies
Metabolic TherapyHello all, I recently had my first TURBT + Mitomycin Wash and want to do everything I can to prevent recurrence. I'm wondering if anyone out there has any experience...Reactions0reactionsComments1 repliesTreatment
What to expect from BCG treatment?I had a diagnosis of high grade non invasive tumor on July 30 and moved quickly to set up treatment using BCG immunotherapy beginning late August. But I've been left...Reactions0reactionsComments22 repliesTreatment
Time off work?Earlier this year I was on short term disability after my first Turbt to remove a tumor. A follow up found a new tumor and now I will be getting...Reactions0reactionsComments9 repliesCaregivingCostCoping
Post TURBT & Mitomycin Lower Back PainHello, had TURBT two days ago. I’m having a lot of stabbing back pain on one side around kidneys. I may have overdone it with activity (gardening). The doc says...Reactions0reactionsComments7 replies
Speck of Blood in urineMy mother just came back from a routine follow up cysto appointment - doctor said everything looks good. Her next cysto appointment is March 2022. Her last BCG treatment was...Reactions0reactionsComments2 replies
FeaturedNewly diagnosed, T1 bladder cancer, presenting as invisible - cystectomy or BCG - help!Hello everyone this is my first post. I've had a stressful few months. Two major surgeries for colon cancer, in theory cancer free... then two weeks later I was diagnosed...Reactions0reactionsComments9 repliesTips & AdviceNewly DiagnosedUrostomy
FISH testing for bladder cancerI got a positive FISH test in December. Dr. ordered another FISH, cystoscopy and CT scans. All were negative. Fast forward to July. I got another positive FISH test. I...Reactions0reactionsComments17 replies