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Read conversations, start a discussion, and connect with others about bladder cancer.

BCG: Don't believe everything you read on-line.

I just completed 6 weeks of BCG. When I started, I was petrified. Not just because I had cancer, but because of the side effects I read about. I'd just...

Not really sure what to do here.

Aloha, a team member question I think, however if someone can answer please do. I had my TURBT two weeks ago an I’m now getting ready for my first BCG...

What to do about negative consequences of surgery

Two years ago I had a cystectomy. Consequences: Gut discomfort is normal with daily stabs of pain Ostomy site is herniated with a semi hemispherical bulge like a portion of...

Fiance has male bladder cancer

My name is josette My fiance harry has bladder cancer. We are trying to find out some information because 1st He is doing chemotherapy 2nd the doctor told him that...

How long do painful bladder spasms last after chemo/radiation therapy

I completed my bladder sparing treatment (turbt/chemo/radiation) for T2 muscle invasive, 10 days ago and my excruciating pain from hourly bladder spasms, day and night is unbearable and wearing me...

ADSTILADRIN - gene therapy

Hi - Has anyone tried ADSTILADRIN? I am currently NED on Keytruda, I’ve been on it for 1 year and NED since my first 6 week Cystoscopy check up, insurance...

Weight loss during treatments

I had let myself gain too much weight prior to being diagnosed about 18 months ago. Doc says my tumors are "superficial" but keep returning after 2 rounds of chemo...

Recurrent UTI'S for a year, Cystoscopy will happen Monday.

I'd love to hear from all of you about your experiences. I have had trace Blood found in Urine. What is the Cystoscopy like, will it hurt, I'm doing it...

Retention of chemo strategies

Hi. My Turbt was done and I had chemo into bladder same day. Tumor returned. I had another TURBT plan was 6 weeks of Chemo into bladder. I cannot hold...

Worried Sick

I went to the doctor for what I thought was a Yeast infection. Doctor found blood in urine & sent me for a bladder & Kidney U.S. Kidney came back...

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