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Read conversations, start a discussion, and connect with others about bladder cancer.

Update: 6 Months Post-Op

Hello everybody, just an update: it's been 6 months since my operation and everything is going well. My recovery is progressing nicely, although I still experience some aches, pains, and...

Lymphedema since Bladder cancer

Hi, I'm hoping others on here that may of had lymph nodes removed/damaged in their groin due to Bladder cancer surgery will be able to give me advice. I had...

Bladder Treatment Options

I can't find the original post about my journey, so here is a recap. I am currently being treated for low-grade, non-invasive bladder cancer at a Urology clinic. We found...

BCG treatment abroad

Hello, I have been diagnosed with urothelial carcinoma T1. After 2 surgeries and 3 doses of Pembrolizumab with 6 doses of BCG I was told that in the US they...

When do you give up on treatment?

Over the last 3+ years I've had 3 TURBT's, chemo, and 3 rounds of BCG, along with cystoscopies every 3 - 4 months. While some of the cystoscopies showed no...

The glutamine super antagonist DRP 104

This drug has been shown to restrict glutamine access to cancer which use glutamine as an energy source. Studies done by John Hopkins has shown that it has a very...

Update

👋 Everyone, well, I am now cancer free. It's just the road to full fitness. It's been a slog, Doctors, Nurses, and all the teams of people that supported me...

Gemcitabine Induction Therapy: Couldn't hold for 2 hrs.

I was diagnosed with low-grade, non-invasive bladder cancer on 8 July 2022 at the age of 72 years. My first TURBT was done on 14 July 2022, followed by six...

Has anyone experience a tumor in the uretal stump?

My right kidney was removed and the ureter from that kidney was cut off and tied with that stump remaining attached to my bladder. I was diagnosed now with a...

Proton therapy

I am 92 years old and was diagnosed with bladder cancer in April. The Urologist told us that there were no good choices. Surgery would be risky because of my...

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