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Read conversations, start a discussion, and connect with others about bladder cancer.

Fireside Chat: Advanced Directives

For some, starting conversations regarding end of life care can be very difficult. When is the right time to start that conversation? Who do we start the conversation with? What...

What can I do to reduce the pain from BCG?

Should we ask for a second opinion about stopping BCG?

My father completed two BCG treatments. Three days after his second treatment he got high temperature 39.2' C which lasted for a few hours. The next two days he only...

What are things to do while waiting at the doctor's?

How do you pass the time in the waiting room or during treatments? What do you bring?...

Has anyone had a cystectomy? What can I expect after surgery?

After the procedure, what are some things to be aware of or questions to ask the doctor?...

Have others experienced inflammation from BCG treatments?

I completed six weeks of BCG last week. I have arthritis in my spine and hips but the pain has increased with the treatments. Is this a common side effect?...

Can BCG treatment be delayed?

Doctor delayed my 5th BCG treatment today because of issues last week with some nausea, headache and fatigue?...

Is it normal to have GI distress after BCG?

I have been experiencing diarrhea, constipation, bloating, gas, flatulence, and abdominal cramps in the 48 hours after BCG. Has anyone else experienced this?...

Thank you.

I just found this site last week and read all the stories and wish to thank all of you. Makes me realize I am not the only one with this...

How long should I experience pain after a TURBT?

Hello All! First post here. I suddenly and without any real symptoms as such got diagnosed with a large non invasive high grade bladder carcinoma. This also was accompanied by...

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