Community Advocates

In order to stay up to date on the latest treatments, drug discovery, clinical studies, and how to cope with atopic dermatitis every day, BladderCancer.net brings you frequent articles, blogs, opinions, and advice from leading patient advocates and professional medical experts.

Alison Petok, MSW, LCSW, MPH

Alison Petok is an oncology social worker; she received her Master in Social Work and Master in Public Health from the University of Pennsylvania. She has worked in oncology research and currently serves as a clinical social worker in the Department of Medical Oncology at Thomas Jefferson University. Read more.

Anita Brown

Anita was diagnosed with a neuroendocrine small cell bladder tumour at age 46. She lives with her husband, Tim, their son, Ashleigh and their fur babies: Sherlock the dog, Ollie, Fuggers & Moma Cat the cats, and not forgetting Barney the bunny. Read more.

Curtis Garbett

Curtis Garbett has been a bladder cancer patient since February, 2015, and was diagnosed with Stage IV bladder cancer in December, 2015. He also has an FGFR mutation that was detected through genetic testing and is currently participating in a clinical trial that studies the effects of an FGFR inhibitor on cancer. Read more.

Jennifer Toth

Jennifer Toth, a mom of 7 grown children, was working full time and part time as a freelance writer when lung cancer came knocking at the door in January 2014. In 2017, Jennifer was diagnosed with a secondary cancer – bladder cancer. Read more.

Jim Van Horne

Jim Van Horne has been one of the most prominent sports commentators in Canada for over 30 years. Next to his marriage and the birth of his kids, Jim’s biggest accomplishment has been surviving bladder cancer. Read more.

Katie Golden

Katie is joining BladderCancer.net for a special project called “Diary of a Caregiver.” In 2016, her grandfather was diagnosed with bladder cancer and later had his bladder removed. Read more.

Nick Myers

Nick Myers, or “Dr. Nick” as people affectionately call him, is currently a Medical Care Coordinator (MCM). He received his B.A. in Psychology from Old Dominion University, his M.A. in Human Sexuality & Health Studies from New York University and his Ph.D. from Widener University in Human Sexuality Education. He has written sexual health education materials and articles, created informational videos and even co-hosted an online radio show on sexual health in relationships. Read more.

Noel Forrest

My name is Noel Forrest, I am 50 years old and was diagnosed in April, 2017 with high grade pT1 transitional cell carcinoma of the bladder…I now as a result of my fight against cancer, want to help those suffering from this disease. My approach to life is to grab opportunities when I can and never regret decisions made. Read more.

Paul Hebert

Diagnosed September, 2012 with multiple tumor, Stage 2 Ta High-grade bladder cancer. Neoadjuvant chemo and then radical cystectomy/prostatectomy January, 2013. Neobladder. Continent (never thought I’d have to put that in a bio… go figure.) Read more.

Renata Louwers

Renata Louwers is a writer, speaker, and bladder cancer patient advocate. She lost her first husband, Ahmad Khoshroo, to bladder cancer in 2014. She has published essays about the cancer patient and caregiver experience in STATnews.com, the Philadelphia Inquirer and the Stanford Scope blog, among others. Read more.

Sarah Watts

Sarah Watts is a freelance writer who lives with her husband and two children in the Chicago suburbs. Read more.

Shirley Norris

Hi, my name is Shirley, I’m 54 and live in the North West of England. I have been married to my husband, Mike for over 34 years. We have 2 grown up sons, one is living in the Netherlands, and the other in our family home in the UK. I also take in rescue dogs and currently have 2 blind senior Boston Terriers, Lolly and Madge and a one eyed pug named Bob. Read more.

With the exception of medical doctors, contributors and moderators at BladderCancer.net are compensated for their contributions to the BladderCancer.net community. If you are interested in joining our team, please contact us at contact@bladdercancer.net.